Had my meeting with the Macmillan Nurse on behalf of my oncologist who is on holiday to discuss my CT Results and moving forward. I was as you can imagine emotional and also angry, not a great combination for me really or those in my path...........I should have had a scan in May....I had told her I was in pain specifically in my liver, but at the time she was more concerned with my ability to cope mentally and wasn't interested in my pain. This has obviously caused her abit of pain now as I am reminding her of this and the fact I have had alot of treatment in the past (again) and that I had full body radiation (again) and that my body and my cells are all abit mutated as it is, hence why I didn't like the idea of chemo as my belief is that it will make my cancer more aggressive.....which I would argue it has, it has been less than a year since I finished my last chemo and it is back where I had the RFA and there are new lesions. The nurse seems to think this is not aggressive. Anyway there was lots of arse covering then we managed to calm down and move forward. I told her I was looking at Latvia and immediately horror stories were reeled out people dying in Germany....etc etc, I also enquired about what I now know to be PLASMA MATCH trial. http://scienceblog.cancerresearchuk.org/2016/10/21/the-perfect-match-making-breast-cancer-treatment-more-personal/.
So I have been put forward for this as in her words she claimed 'I have to win back your trust' I had told her I don't want chemo I want targeted therapies. So the plan now........Plasma match trial ...get on it at the Marsden......then if that fails, crowd fund myself to go to the states for the latest immuno therapy course in California.
Weirdly I had a fortune teller experience recently that said I would do some travelling ....watch this space.......
Getting back on the increasingly big horse, feeling my strength return and the regime of Turmeric, cellfood, hemp tincture, mistletoe tea, dandelion root and frankincense get reinstated with vigour. Drinking lots of purified water and having faith in the universe once more that I will make the right decisions whether the medical profession in the UK like it or not. I have free reign from my family now, I think they understand as does my macmillan nurse now that I do know my body so spookily well, and i don't have time to mess with long term oral chemo treatments, lets load up the big guns and see this cancer outta town.......
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