OBVIOUSLY I am trying to find any excuse to go travelling again, while Mexico sounds blissful and like an oasis of white coated people offering miracle cures at their clinic, Germany is slightly closer. (Although I notice that Rigvir is also in the Bahamas....) Rigvir, my new favourite word. unfortunately the doctors in this country don't seem to be aware of it, they are aware of 'immunotherapy' but only as a treatment for triple negative breast cancer, but this stuff is across europe and the states like a viral rash. It is as I mentioned before, my alternative treatment of choice.
http://www.medicalcenter-mommsenstrasse.de/en/the-clinic/therapy-offers/oncolytic-viruses-rigvir - Berlin clinic - Rigvir
I sent a form off today to get some hardcore facts, i.e. the cost factor, just exactly how many readies are we talking here? this is the only block in my path, apart from the fact they may say I am not suitable. I discovered today that there is a clinic in Berlin who use this therapy and so my focus is now firmly placed here. We are fortunate to have a German friend who may help but they are living in Bavaria and I think it may be a trek to Berlin from there!
I wait to hear exactly how much it would cost to go for this option. I try to steer myself from notions of cabaret clubs, art galleries theatres and the bars of Berlin....and instead of just getting there and back.
Meanwhile back in the bulging supplement cupboards I have added a PH tester ( keeping myself suitably alkalined due to constant indigestion) I test my urine to make sure my levels are within the healthy range and then I take a quarter of a teaspoon of bicarb with water morning and evening if I need to up the alkaline anty. Now, yes I am obsessed and abit neurotic but I have also got some dipsticks to test for RBC, WBC and protein....I know I know, it is crazy but I am treating myself like a machine, and I need to be running at optimum power and efficiency. So everything has to be perfectly balanced.
So my diet is trying to cut out the acid now cant wait for blood results tomorrow ....... I have been taking iron to boost the RBC's so hopefully that will show up.
I have been shockingly tired today I just hope this will not last I have friends over this weekend and one of them has travelled over from France so I must be on top awake form as I haven't seen her for so long and I want to make the most of her.
On a different note of revelling in 'the truth will out', my daughter has been assessed by a speech and language therapist who agrees that she may well be on the autistic spectrum... it has only taken 5 years to get to this point, with her father not supporting my thoughts and instead siding with the school who said there was nothing wrong, I now have in writing by ACTUAL professionals who specialise in ASD what I have known all along. It feels good to know that I am not mad and that my daughter will hopefully be getting the access to the support she needs and that her secondary school future looks rosier now that her well being is being catered for and allowances can be made for her during these awful hideous stressful tests and exams that give neurotypical children's stress levels a run for their money let alone a child with processing struggles. It really couldn't be better timing for us, a weight has lifted from my shoulders, as I even dare to think about the future. So far, its been a good week, just hope the 9th chemo tomorrow doesn't bring me down too much, I know I will sleep, but I think an extra batch of my protein energy balls maybe required to accompany me !!
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