Anyway, I am now eating my words as we speak. The hospital has pulled out all of the stops to scan me as my ongoing abdominal issues (last two weeks) are now sounding alarm bells. The very amazing breast cancer care group I attend locally is chaired by a qualified counsellor who works for a Kent Hospice and I believe my 'offloading' the other day at our group meeting may have caused some concern and the resulting ripples have perhaps caused some action. Today I have had the local hospice phone me to see if they can help and I have had an 'emergency CT Scan' and my chemo has now been cancelled for a week, big red writing flashed up on the Secretaries screen at the hospital today, notifying her that everything was cancelled until further notice....due to me and my inflating stomach......
I also have been approached by the professor who led my Liver RFA in 2016, I had emailed his secretary in some blind attempt to see if he would give my liver a fresh new biopsy for the purpose of profiling it for the 100000 genome project as my clinician and oncologist told me flat outright that they would not get involved, they even told me that the professor who treated me had retired!!. Now I am obviously considering this approach to cover any potential progression as my health history as I have mentioned before, is not great as I have previously had whole body radiotherapy in 1988 and a considerable amount of toxic chemicals pumped through me, therefore I am considering alternative DNA based options as well as following the metabolic approach laid out in Jane McLellands book 'How to Starve Cancer'. She actually dismisses the DNA targetted approach and lays caution towards biopsies so I am literally looking at the polar opposite ideas and hoping that one works.
The risk with a biopsy is further metastasis, cancer cells leaking into the blood stream, but, what if the cancer has become prolific anyway due to chemo mutation or aggressive growth....She also reccommends anti inflammatory drugs when having a biopsy or surgery, both of which I may have if my abdomen proves to be host to a tricky resident.
Bascically if my cancer has progressed my options are now limited to aggressive chemo only as I am unable to have radiotherapy. But I am trying to extend my options with a DNA profile and by doing all I can with supplements. I am also considering getting a gut microbiome profile so that I can replace any missing bacteria from my gut, this can be done by post within 6 weeks.The best company appears to be ATLAS. Although by getting a consultation with a specialist I maybe able to get a profile quicker but it would cost considerably more.
For now I am looking at doing all I can with my daughter, family and friends and I have been gifted a holiday which I am so looking forward to!! particularly the en suite hot tub!!! I have been so lucky this summer to have spent an amazing holiday with kind friends who went over and above their duty as friends by going ahead and hosting and make me feel comfortable in a house they organised and in a place where all of us old friends could get to gether and I have been camping with friends and have a festival to look forward to where I will be holding a workshop on organic skincare to keep my soul amused.
There is life in the old dog yet.
So.........Bazaarly for some weird reason I have had Paul McCartney singing in my head, his blackbird song.......https://www.youtube.com/watch?v=9l5L34VqzlU
