On one hand I have the NHS funded by a government that seeks only to satisfy their own pockets leaving smaller hospitals in tiny towns with bugger all to provide their patients with.
On another hand their is the mentality of individuals that are employed into a low funded system, some of which have to have big ego's to survive and are only interested in covering their arses.
I also have month on month of ACTUAL PEOPLE with the same disease as me, seeing the same doctors and the same clinical ego's dying, one by one they die, they follow the entrenched path trodden by patient after patient in a system that is failing through no fault of the qualified medical professionals who have spent zero hours studying the matabolics of cancer moreover the holisitic nutrition (check out these blue zones that are being researched for the health benefits of their daily nutrition and low cancer rates The five blue zones are as follows:
- The Italian island of Sardinia.
- Okinawa, Japan.
- Loma Linda, California.
- Costa Rica's isolated Nicoya Peninsula.
- Ikaria, an isolated Greek island.
On the other hand I also have my life and my family, my friends and my brain and my thoughts and my limited funds with even supplements involved in managing the metabolic approach range from costing £25 for one months supply of just one supplement and that's just one component to the multi faceted approach and then to go to Germany for targetted chemo and hypothermia ranging from £6000 per week to have a very lovely German Professor manage your cancer in the manner that it should be managed through an NHS system if it were to work effectively and with a patient centered approach.
I am just happy that I have met the people I have and that I have faith in the connections I make tangibly and otherwise, I know that I have the inner drive to nail this and that is entirely what I intend to do, I just wish that those who have lost their life and are currently losing their lives could have had the healthcare system that it should be instead of as I was essentially advised by the chemo nurse on my first infusion for secondary breast cancer to ' eat doughnuts to avoid losing weight'.
My oncologist knows that I am on the brink of referring myself to another hospital in London and it is not that I don't respect her ...far from it she knows why I am thinking of doing it...... and she acknowledges that, she has advised me to stay on current treatment and I respect that it is working and I should stay on it. I have tried to get a DNA profile through a research project at Queen Marys called the 100000 Genome project on the NHS and through a private company whereby my own DNA will be profiled (post bone Marrow Transplant as DNA is now squiffy) and then my cancers DNA but she has to save her own arse as far as funding goes as there is no ACTUAL reason for her to do it all the time my current poison is working, she knows why I am doing it for my own future treatment......BUT the lectures I have attended have suggested that the answer is not in the DNA but more the metabolic landscape and the epigenetics.....therefore I feel my path unfolds in the assessment of these areas and that I need to support my current treatment from the landscape perspective and spend a vast amount in supplements, and hyperbaric oxygen and nutrition as well as off label drugs such as aspirin, anti inflammatory drugs and reducing glucose levels......
It is soooo confusing, I do whole heartedly respct my oncologist, but having seen the aftermath of my clinician who is only interested in her status and the amount of 'Scientific Background' she has, (she didnt feedback to my oncologist my latest pleural pain as she probably felt it was anxiety based.....a very very familiar story at the cancer awareness lectures a common theme amongst patients that our symptoms are 'anxiety' based to the point where the author Fi Munro was dismissed for around a year before she was finally scanned and given weeks to live on the findings of her metastasized ovarian cancer, her book....... love light and mermaid tails) The ego of my clinician and her desire to be 'in control with her science and save money' I fear is at a point of no return .....I feel a turning point is on the horizon............
Grab your bulls ladies.......
