Tuesday, 13 September 2016

interesting article that says it all.

I have always found there is something about the pink fluffy brigade despite all the good that they are doing, slightly irritating. the little pink ribbons etc etc 'hey pink sister' etc etc running in mini skirts and fluffy hairbands. it sounds awful doesn't it. This article leapt out at me and reminded me why it is so important that breast cancer research gets the charity funding it so desperately needs, particularly secondary breast cancer. Secondary breast cancer seems to disappear under a giant umbrella and the general public don't seem to hear of it they just hear the words 'breast cancer' in the primary sense which thankfully is becoming more and more treatable. The umbrella however is giant and contains many variations regarding the severity and treatability coupled with each individual body and tolerance to drugs etc.

I asked my oncologist what she thought about me going to Latvia should the cancer return, she said 'You have to ask yourself why if the treatment is so good we are not doing it in the UK'.......i stopped myself from blurting out 'because NICE and the pharmaceutical companies don't want to lose business perhaps?'........this article explains some of the problems in this country, the backhanders that no doubt are going on behind closed doors. conspiracy theory? Absoloutely, because conspiracy is exactly what it is. The other countries within our sacred EU are way ahead in treatments for cancer, people don't believe me when I say this, they think i am being negative, it is true. I am so pleased that i watched the online documentary The Truth About Cancer with Ty Bollinger. While most of it was typically american in it's oTT production it opened my eyes as to what is out there around the world and how as cancer patients we really can help ourselves. The ever declining NHS due to the Chomski derived theory that you just need to stop funding something to take it out of society and the Tory desire to get rid of it to their own ends is further fuelling my fear for the future as an unemployed single mother with an incurable cancer. I have to think very hard about my plan B's, I am even considering moving abroad to be honest although i know that is just pie in the sky as my family are here and my mum is reading this hahaha!! But seriously, it is a concern, more charities will be leant on to support those in need, places like Hospice in the Weald and the Pickering Centre will become places that pick up the slack from the patients abandoned by hospitals. It is down to us, the people to vote with our hearts and to support these charities, the wonderful work of MacMillan that provides invaluable service to people like me are so worthy of every penny and if gratitude could fund I would be opening a giant Macmillan Hospital. Vote Labour in the next election for the NHS that is the only way we can save it. Anyway please read this article and you will see why Latvia is in my plan B. http://www.telegraph.co.uk/wellbeing/health-advice/the-words-secondary-advanced-and-metastasised-need-to-be-as-well/

Wednesday, 7 September 2016

Bang and the dirt is gone

I think i have given myself artistic license, it hasn't totally gone, there is a tiny scrap of evil cell based carcinoma left. I saw my oncologist today and her usual radiant smile had gone up a couple of notches and my mother and i were concerned that she may actually explode in an intelligent cloud of smiley science. she was very pleased with my MRI results and suggested that RFA (radio frequency abalation) could well be possible. When i approached her on the subject of the Ultrasound doctor saying it had not shrunk anymore she raised her eyes and exclaimed 'i wish he wouldn't keep doing that'!!!
Apparently the fact it hasn't shrunk could be a good sign, in the respect it could be scar tissue from the cancer which is why it is not shrinking further, but the liver has....(or could it be the turmeric? ;))....

So now i clutch in my dirty mits a prescription for letrozole (yes i will be googling this regarding opinions and scientific evidence...) which apparently will attempt to keep the cancer at bay in a hormonal way.

I have been referred to a liver specialist for consultation regarding surgery and I am meeting with the breast surgeon next week to discuss surgery too.

So all in all....a positive day...she said ' it is the best outcome we could have hoped for' words i won't forget for a while.

I feel blessed i feel I can plan again, my career whats next? watch this space

Strangely, Oasis has come on the radio singing ' I am gonna live forever'....if only that were true but currently i feel like a cat with nine lives.